Sunday, October 14, 2018

He’s still sleeping beside me ....

I know the the difference between him just turning over and when he’s seizing.  I know what the cycles of his breathing sounds like through the night. I think there are times he holds his breath or doesn’t breath or breaths so quietly I have to poke him.  How can he sound like Darth Vader one moment and then no noise the next?

He’s gone from seizing every twenty minutes after falling asleep to none that I can tell last night.  I think he’s regulating on the new dose and time protocol we’ve got going.  He’s really wanting to move back into his own bed while Elliot loves sleeping in our room. He feels safe, he says.  Isaac has teen retreat next weekend and he wants to sleep at camp.  We’ve told him we’ll see how this week goes, but it appears we’re on the upswing of this brutal month long chapter.  So that’s good.