Thursday, January 30, 2014

Catching up.....

Isaac is back to school after a week and has forgotten his spelling book at school.  Here he is on his first phone call to his friend Lium, asking to spell the words for him so he can write them down and study them.  So cute. 

Posted by at

Tuesday, January 28, 2014

Brutiful Week at a glance....


Caught her telling a story about her brother Garry and his adventure on his boat.
MRI....Sunday morning.
Following the orange line to the MRI department.
Signing his own medical forms....
Fiesty the whole week through....
Sunday night angel.  Chiro cleaning while kids watched movies on the big screen.....
She sat with me and then guarded the door while I showered, just like when Isaac was born, she watched the baby so I could shower.....love this girl.
 The ride home......but week over.
 Picking up school work....Elliot was happy to see his brother...
 Sawatzkys got Isaac the best gift - 20 questions.  It was his constant companion upon introduction.
 The last breakfast....hospital food isn't that bad.
 One final cuddle on tuesday morning before discharge......he misses the bed.  
We got the answers we needed, EEG's and MRI's in record time, now its time to start life over with this new hitch....didn't want to write anything about this past week, but chris felt I should write something to document it, in all its awfulness and all its beautifulness....Momastery says it well when she calls life "Brutiful"....it was a brutiful week. Chris and I are stronger together, we grew closer and held onto eachother for dear life as we went through the hardest week of both our lives.  We took turns breaking, and felt so loved and supported by our friends and family.  Each of our facebook threads, updating our loved ones mostly all got 100 likes and a pile of emails coming through to us at our darkest hours.  The friends and my amazing sister who let me sob on the phone in the middle of the night are bonds that got stronger through those weakest times.  Some of the most beautiful words were spoken to us as we watched our boy, almost skip through this week, appearing to be fully unaware of our terror of the unknown of what was causing his seizures.  An email from Jenny that came in the middle of the night during one of my darker hours, will always be in my heart as a really special part of the week.  For the first time since I have met her, she shared part of her heart with me, and I sobbed at the words.  I want to write more, but I won't because of the number of eyes on my blog. I feel as though I can't be candid because of who reads my words and its a strange time, an uncomfortable time where I feel as though I can't be honest about the details of this brutal week.  But at the end of the day, there is much love in our lives and many people love our children so much...and Isaac will be ok...so what more could we ask for?  
Posted by at

Saturday, January 25, 2014

Not the most exciting date.

Out first time out of the hospital together......
But our chaperone had a great time:

Posted by at

Maybe I can blog today

But for now I am busy standing guard at isaacs room door. So far I've turned away the nurses who wanted another set of vitals ( don't worry, he'll still have a pulse in a few hours when he wakes up), bloodwork guy (seriously, who wants to wake up like that?!  He'll still have blood in him in an hour),  and then breakfast lady; ' here, let me take those trays in for you, you loud, clangy food lady, but I love you, thanks for food)....

Mission accomplished so far as he is still sleeping.
Posted by at

The Facebook Thread that rocked my world at the best time....

It was 3am....I had gotten a few hours sleep and felt a little manic....this is what happened.  There were a few weak ones that threw the thread off a little, but thats ok.....it was such good timing to imagine the whole mission going down...with my friends....here we go:

Seizure meds seem to be working. He has had a good night of sleep so far, we both have. MRI mobile machine just 'happens' to be in parked in the parking lot, so we are feeling hopeful that today is the day he can get in there if all the right calls are made. So things are looking up...and did you know there are more MRI machines in the state of Washington than there are in all of canada? Little tidbit for you. After 4 hours of glorious sleep I feel I have the brain power to start working on my stealth plan to sneak Isaac into that trailer if the basic avenues don't work. Who's in? Will include black under eye paint and a sticker that says "got MRI?"
Unlike ·  · 
Posted by at
Subscribe to: Posts (Atom)