Thursday, January 23, 2014

Trepidation.

As I whisper "it's been 14 hours since his last seizure".... I am amazed at the elation of this since we haven't had a day like this in almost 2 months.  2 months !!!!!

What is going on ?  What is happening? 

Isaac and Elliot are both in our rooms tonight....Isaac still seems wired. And unable to settle. It's 10:40 and he's still awake and giddy.  And we are all scared to go to sleep .... Clinging to the hope that maybe ... Maybe .... He's been (whispering) healed??  

We are falling asleep, holding our breaths.  See you in the morning.  

Update: nevermind, seizure #1 after a 14 hour day of blissful seizure-less days just made it's re-appearance.  Sigh.  Here we go again.